May 18, 2021 by Judith Allen Shone
Providing insights into Myasthenia Gravis!
I am soooo grateful you took time to visit and maybe add some MYASTHENIA GRAVIS INSIGHTS, as we raise awareness of Myasthenia Gravis!
Because I have lived with MG since 1956, I am inspired to shine a ray of light, my beacon of hope, as I add my voice in the campaign to raise awareness of myasthenia gravis, for the layman and those beginning to search. Join me!
Browse What is Myasthenia Gravis?
– it is a good place to begin
Do you have, or do you know someone with,
muscle weakness? slurring speech? drooping eyelids?
Rare and complex
Myasthenia gravis is a very rare and complex, chronic, autoimmune, neuromuscular disorder that affects approximately 700,000 people globally, per Raremark Rare Diseases, who show between 36,000 and 60,000 people in the US and 10,000-12,000 in Canada are known to have MG. (12-20/100,000 in population).
The explanations shown on What is Myasthenia Gravis? are meant to be brief, yet concise, on an introductory level. If you recognize signs, then perhaps this is a disease you will want to explore further online and with your doctor.
This site offers an introductory glance at myasthenia gravis, to bring attention to MG as one of many possible causes associated with weak muscles. However, it is not to be used in lieu of discussion with a professional health care provider.
Insights can bring understanding
Insights shift our understanding—a clear “aha” moment nudges us as it unexpectedly presents a solution to a problem.
- AWARENESS of myasthenia gravis can change perception.
- Patients begin to build confidence and restore courage.
- They might even feel relief, calm, and experience that powerful expectation—HOPE.
- More importantly, stigma and misunderstandings, for ourselves and about others, begin to disappear!
It only takes minutes … to shine YOUR inner beacon of hope for MYASTHENIA GRAVIS
(1) Take time to recognize the name myasthenia gravis.
(2) Tell someone else what you have discovered about Myasthenia Gravis:
– let them become familiar with the sound when you say the name (my-us-THEE-nee-uh GRAV-is),
– let them know several symptoms: grave muscle weakness, slurred speech, droopy eyelids, blurred or double vision, weak body muscles, trouble swallowing or breathing.
(3) You become a beacon of hope for myasthenia gravis… for awareness, understanding and hope for a cure.
🌞 I love that you join me to raise awareness! 👍🥰. THANK YOU! ~jas
First time to the site?
Explore blog topics seen in right column!
Learn something new about myasthenia gravis and pass it along!
“Be a rainbow in someone else’s cloud.”Maya Angelou
My intention here is to informally introduce resources, sites with various types of knowledge, some might include history, others research, all to ‘light up’ myasthenia gravis, a chronic, autoimmune, neuromuscular disease that few people have heard about. Plus, I share personal stories.
MYASTHENIA GRAVIS INSIGHTS will be a relatively small, focused, site. It will not be an all-inclusive site. But, instead, it will be an introduction that you can personally follow up elsewhere if you are interested. You may or may not be able to relate to this information, or this information may or may not apply to you, but we thank you for wanting to learn about Myasthenia Gravis.
First, while I am not a doctor, nor a professional health care provider of any kind, for more than sixty-five years, I have been living with various degrees of the neuromuscular disorder myasthenia gravis, often referred to as MG.
I’m a ‘middle-aged’ senior. Today marks the first moments towards completing my 80th year. It’s time I helped spread the word about MG.
In these later years of my life, I feel driven to bring optimism, encouragement, and revelation to those looking for information related to muscle weakness, to to be part of a campaign that shines light on this disease so more people with “grave muscle weakness” can become familiar with myasthenia gravis.
For the last ten years, I have been a caregiver for my spouse with Alzheimer’s, COPD, and anxiety, beginning just four years after retirement. During that time, I have been hosting a caregiving site related to dementia and have published two books* about our ongoing journey, believing I could help spouse-caregivers find reassurance, hope and courage through knowledge and true stories. I wanted to help them discover they need not walk their path alone.
And now, I am even more inspired to do the same for those who feel they may have, or do have, myasthenia gravis. I am fulfilling the promise I made to myself to help illuminate myasthenia gravis.
Read a brief account of my story.
LOOKING FOR THE COMMENT SECTIONS on the blog post pages? Click titles of blog articles on list in right column, and you will go to each post separately, where comment section is at the bottom. Comment sections are at the bottom of all top-menu pages. Thank you. 😊
- Links to support groups
locally, or online
- Confusion heard by those those challenged by MG.
- Ten curious responses to myasthenia gravis
- Thoughts for preparing for your visit with your doctor
- I hope you will be moved to take time to share our website link –https://myasthenia-gravis-insights.com/ so others can also learn!
- This is an awareness site only.
No diagnosis or treatment suggestions. Mainly, it’s support and links for those who are searching for ‘reasons they have weak muscles.’
- What is Myasthenia Gravis?
Brief descriptions with links to various sites with abundant information.
- Read How it feels to have MG
- Resource links where you can find and read more about myasthenia.
- Guest Author post: “What is Myasthenia Gravis,” by Rebekah Dorr, a patient since 2011, from FB Myasthenia Gravis Unmasked.
- Follow the blog posts seen in right column, during the 30 days to briefly learn a little at a time about MG
- Newest and most viewed postings are listed in the right hand column of this page.
- Learn something new and pass it along to someone who did not know.
NOTE: Remember to refresh a page to be sure you have the most current version showing on your screen.
Watch our right side bar to see most recent posts about many aspects of Myasthenia Gravis.
Want to walk for, or donate to Myasthenia Gravis Society of Canada?
Visit Donate to MG Canada
For the record
If you think you may have a medical emergency, call your doctor, go to the emergency department, or call 911 immediately.
This WEBSITE is in no way a substitute for any level of medical help or advice. Please, refer to your physician when unknown symptoms persist.
Any questions that come up should be directed to your physician or other professional health care provider. Our only suggestion is for you to contact your own health care provider for clarification or further information. See also Disclaimer Record
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a site solely for awareness of Myasthenia Gravis.
Watercolor & logo flowers image by Luciana Silva from Pixabay
Romantic table image by MiVargof from Pixabay
combined with abstract image by JL G from Pixabay
Man with tablet image by Karolina Grabowska from Pixabay
Sun rays Image by Clker-Free-Vector-Images from Pixabay
The iris images used on the blog posts were chosen because
iris represents wisdom and hope.
Myasthenia Gravis Insights © 2021 Judith Allen Shone
Inspiration © 2021 Judith Allen Shone
Host/Author’s books, referred to in the text:
* Hosted blog & website: Accepting the Gift of Caregiving,
where caregivers encourage one another.
* Two caregiver books
Accepting the Gift of Caregiving book series,
Is There Any Ice Cream? and Did You Hide the Cookies?
by Judith Allen Shone
For nearly ten years, including today, I have been a caregiver 24/7 for one with Alzheimer’s, Anxiety and COPD. I share that ongoing story…the discoveries of being a caregiver, the support, the classes, through the emotional desperations experienced during those years….in the two-book series Accepting the Gift of Caregiving: