…dedicated to raising awareness of Myasthenia Gravis.
An important possible behavior experienced by those with myasthenia gravis is a flareup.
Rebekah Dorr states:
“Flares are often acute, temporary worsening or increase of symptoms (can be a few specific ones or generalized). Flares can be caused by poor sleep, stress, weather and hormonal changes, medication changes (increase, decrease or discharged) etc.
“They can usually be managed at home with good communication with a skilled provider and what you have learned about your specific symptoms and presentation with time.
“However, respiratory involvement is another matter. Respiratory weakness with a flare should be considered an exacerbation which has the strong potential to lead to crisis and should be taken care of very carefully. Do not brush off this particular symptom. You may be able to manage at home if it’s more mild and you have supportive equipment or rescue meds (like a temporary boost in steroids or changes to mestinon as prescribed by your dr), but moderate and severe symptoms should always get checked out quickly.
“If you ever feel a flare or exacerbation is concerning you and in your gut you know something is wrong, don’t hesitate to get help.
“I know we face a whole lot of crap at the ER and hospitals. A lot of it. And we get scared to go. But I would rather we go and try and fight before it’s too late and we are being rushed in and intubated or worse.”
(c) 2021 Rebekah Dorr
I think it is important to note that, while everyone is different, the Outlook, found on Medical News Today:
“…people with MG can live a life without regular flareups as long as they stick to a regular treatment plan.”
Read more about Rebekah Dorr, and the post she shared here earlier this month, “What is Myasthenia Gravis?”, a pictorial description in words.
A patient since 2011, Rebekah is a passionate advocate for those with MG, who avails herself for those with questions by communicating on/monitoring her Facebook community site. Find out more about this amazing lady!
Again, having these symptoms does not mean you have MG, but they might be an indicator for discussion with your doctor.
Visit sites for Support
If you are searching for answers for ‘muscle weakness’ symptoms and have reason to believe you might want to talk to your doctor about myasthenia gravis, spend some time online reading comments others have shared. Visit Supporting One Another.
If you have access to Facebook and can find the site, Myasthenia Gravis Unmasked, it will be worth your time to browse through the immense volume of information there. There are noted nearly 15,000 followers— you will find you are not alone.
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Watch our right side bar to see most recent posts about many aspects of Myasthenia Gravis.
Seven days – MG flareups (c) Judith Allen Shone
with (C) 2021 Rebekah Dorr her writeup on flares.
In support of the Myasthenia Gravis Insights website, and because I am still a 24/7 caregiver, I share my caregiver books. Thank you for checking them out! You are my sunshine. ~Judith Allen Shone
For Alzheimer’s, Vascular Dementia, COPD and anxiety spouse-caregiving stories, learn about these two books, Accepting the Gift of Caregiving series.
Alzheimer Society Halton
4391 Harvester Rd
A Different Drummer Books
513 Locust Street