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Thirty days to raise awareness

dedicated to raising awareness of Myasthenia Gravis.

My wish is that, at least once in this month, each one of us will tell someone else about Myasthenia Gravis,

… a rare, chronic, autoimmune
neuromuscular disorder for which there is no cure.

Become part of their hope

Let’s find time to reassure those seeking a diagnosis that we want to be part of their hopeour encouragement takes only as much time as to read this site, while we drink one coffee together!

Our effort to learn so we can introduce MG to someone who never has heard of it, like the ripples in a stream, will begin to reach those who are searching, and will make a huge difference in untold lives.

Watch our right side bar during June Awareness Month as throughout the month we add posts about many aspects of Myasthenia Gravis.

Easy, peezy

  1. Learn something about myasthenia gravis.
  2. See What is Myasthenia Gravis? to add to your understanding.
  3. See Resources for MG if you yearn to learn for more.
  4. Tell another person about myasthenia gravis.
  5. After that, go to the bottom of the INSPIRATION page on this site and make some excitement….write:
    “I DID IT” in the comments.
  6. You rock! You are awesome!!
    You can make a difference. Thank you!!!

Thank you…you’ve made my heart sing!

Please, SHARE THIS SITE ...
others can learn by reading what you have discovered… a site solely for awareness of Myasthenia Gravis.


Art credit, iris garden: Tatiana Mitrushova on etsy
Iris = Wisdom and HOPE

Thirty days to raise awareness (c) 2021 Judith Allen Shone

Children can read about MG

dedicated to raising awareness of Myasthenia Gravis.

Over the years, a philosophy of life has emerged. One that I can live with, one that resonates with my core: “I’m going to be very happy, and then do everything I have ability and time to do after that.”

It did not happen overnight, but I now realize the importance of having that way of thinking for ME…giving me permission to let the stress of life evaporate.

Exciting to find this book!

I’m Still Me, My Life with MG, is written by Jenny Coffey and illustrated by Jenny Coffey and Caleb Sawyer. I don’t know the assigned reading level, but I believe all levels of readers will benefit, although in appearance, I first think of children.

When I read this wonderful book by author, (Smiley) Jenny Coffey, with her positive tone, it warmed my heart. The story fit not only into my current caregiver life and my recently resurfacing MG life, but also into the style of life I had consciously yearned for all my nearly-80 years.

I am so glad Jenny Coffey wrote (and illustrated) I’m Still Me: My Life with MG about her childhood “adventure” with MG. I find the perspective so positive, so filled with optimism, a tone that will transfer when reading to children, as well as when they read it to themselves.

Why am I qualified to praise this book?

I have had myasthenia gravis (MG) since I was twelve, (for sixty-seven years) and know how much this is going to help youngsters have a better understanding of classmates or others who appear unfamiliar in some way, in this case, with a disease causing muscle weakness. This book will possibly help some understand the feelings of one with MG so that person might not have to go through shame and hurt.

Both parents and children will be able to read it, or parents can read to children, either way, both will become more aware of a rare, debilitating, disease that is going undiagnosed for many…(I am not sure why.) June is Myasthenia Gravis Awareness Month and I encourage everyone to read this book, ask your library to add it, share it with schools.

Beginning in June, Myasthenia Gravis Awareness Month, and maybe every chance you have thereafter, I ask you to TELL ONE PERSON the name of the disease and how muscle weakness affects the body. I have heard it spoken both “my-us-THEE-nee-uh GRAV-is” and “my-us-THEE-nee-uh GRAY-vis.”

I see a publishing date of 2019 noted on Amazon…. go have a look at this adorably illustrated, beautifully characterized book with important messages for us all.

Thank you, Judy Shone

LOOKING FOR THE COMMENT SECTIONS? Click titles of blog articles and you will go to each post separately, where comment section is at the bottom. Thank you.

Watch our right side bar to see most recent posts about many aspects of Myasthenia Gravis.

Please, SHARE THIS SITE ...
others can learn by reading what you have discovered… a site solely for awareness of Myasthenia Gravis.


Children can understand MG (c) 2021 Judith Allen Shone

Myasthenia Gravis Awareness Month

May 20, 2021 by Judith Allen Shone

dedicated to raising awareness of Myasthenia Gravis.

My intention on the site is to informally introduce What is Myasthenia Gravis?, a rare, chronic, autoimmune, neuromuscular disease that few people have heard about or know much about. In 2020, there were only an estimated 700,000 cases worldwide, with between 36,000 to 60,ooo estimated in Canada.

I share some personal confusions that I experienced during the six years it took for diagnosis, along with ten curious responses that I have heard over the years. The self-care I practice at nearly 80 is briefly outlined. Only a smidgeon of my sixty-five-year story, that began in 1956 when I first felt the muscle fatigue and weakness, is included. For now, site focus is helping others discover what might be helpful for them.

There are online resources listed, sites with various types of knowledge, some might include history, others research, all to ‘light up’ myasthenia gravis,

The easy navigation and simplicity of finding information on a website menu suits Myasthenia Gravis Insights well.

My wish is that readers will share with friends or family who they know have symptoms and hopefully, if they relate, will encourage them to talk to their family doctor. There is no way to know for sure if someone has MG without doctor investigation and evaluation.

Please bookmark this site. FORWARD this post URL link to someone whom you feel might benefit or might know someone who might benefit. We are raising awareness so others can gather information for discussion with their doctor to help sort out their symptoms.

Periodically, I will send a post, like this post, to remind folks of the disease. Or of any new pages added. Email notice about additions will be sent to those who sign up requesting to be included. Not more than once a month. Add your name here and you will be on the list for this purpose. Thank you.

Want to walk for, or donate to,
Myasthenia Gravis Society of Canada?
Visit Step Up for MG Fit or Press Release

I hope if you have myasthenia gravis you are living well. I hope that if you are searching for answers, you soon find yours.

Thank you for sharing Myasthenia Gravis so we can raise awareness of myasthenia gravis together and hopefully help others find a diagnosis, even if it is another disease.

Watch our right side bar to see most recent posts about many aspects of Myasthenia Gravis.

LOOKING FOR THE COMMENT SECTIONS? Click titles of blog articles and you will go to each post separately, where comment section is at the bottom. Thank you.

Please, SHARE THIS SITE ...
others can learn by reading what you have discovered… a site solely for awareness of Myasthenia Gravis.

THANK YOU. Judy Shone


Myasthenia Gravis Awareness Month (c) 2021 Judith Allen Shone