Resources for MG

May 18, 2021 by Judith Allen Shone

“Knowing that we can be loved exactly as we are gives us all the best opportunity for growing into the healthiest of people.”

Mr. Rogers (Fred Rogers)

A brief list of related websites are listed below
under the umbrella of myasthenia gravis

The sites on this list are a beginning, and were selected from many available on the internet ‘under the umbrella’ of Myasthenia Gravis. Begin uncovering information here, and once started, ‘ask Alexa or Siri’- you will discover many more!

Umbrella in illustration format of the various categories of MG

Website list focus:

  • About MG
  • About MG Self-care
  • MG Newsletters & Other
  • MG studies and reports
  • Books, videos, podcasts still to be listed, but you can search.
  • Research articles and conference reports still to be listed.

Myasthenia Gravis Insights does not endorse any specific MG sites on the internet. I, too, am always looking and learning, as well.

These sites appear to have information that can help us start gathering information about MG. Make a comment if you know a site that is especially appropriate for this page, especially for beginners to start learning about myasthenia gravis, all for information gathering – it can be added to the list. Always ‘reboot’ any page for most recent content.

This list does not intend to show preference. Instead, it is an alphabetical list presented in one place. Doctors may have preferred sites for you to study. Ask. And, if your doctor mentions one, visit it.

When we search, one thing leads to another… The trick is getting started, because once searching begins, there is much to learn…begin right here.

Once a preferred site is discovered, then the reader will likely be seeking information beyond the scope and purpose of this site.

Remember, we are located in Ontario, Canada, but that only means you might hear a Canadian/American accent! Myasthenia Gravis does not know country boundaries or languages. Perhaps the Google translation widget in the right column can help you if you are more comfortable with another language.

I wish you a successful journey.

Let’s get started together…

Myasthenia Gravis Society
of Canada

Myasthenia Gravis Society of Canada
EMAIL ADDRESS
Phone (905) 642 2545


Myasthenia Gravis Foundation of America

Myasthenia Gravis Foundation of America
EMAIL ADDRESS
Phone 1 (800) 541 5454


ABOUT MG

American Academy of Ophthalmology – (eyes) What is Myasthenia Gravis?

American Association for Pediatric and Strabismus – (eyes) – Myasthenia Gravis

Canadian Neuro-Ophthalmology Group – (eyes) Ocular myasthenia

Myasthenia Gravis – The American Journal of Medicine

Myasthenia Gravis Association of British Columbia

Myasthenia Gravis Association of Western Pennsylvania

Myasthenia Gravis – Better Health Network (AU) Printable fact sheet

Myasthenia Gravis – Brain Foundation

Myasthenia Gravis – Britannica

Myasthenia Gravis – Cedars Sinai

Myasthenia Gravis -Children’s Hospital Wisconsin

Myasthenia Gravis – Cleveland Clinic

Myasthenia Gravis Coalition of Canada

Myasthenia Gravis – Conquer Myasthenia Gravis

Myasthenia Gravis Facebook Group

Myasthenia Gravis Unmasked on Facebook

Myasthenia Gravis Foundation of California

Myasthenia Gravis Foundation of Michigan

Myasthenia Gravis – Harvard Health Publishing

Myasthenia Gravis – Healthline

Myasthenia Gravis – Johns Hopkins Medicine

Myasthenia Gravis – Kentucky Neuroscience Institute

Myasthenia Gravis – Mayo Clinic

Myasthenia Gravis – Medicine Net

Myasthenia Gravid – MedicinePlus

Myasthenia Gravis – Merck Manual Consumer

Myasthenia Gravis – MG United

Myasthenia Gravis – Muscular Dystrophy

Myasthenia Gravis – My Real World

Myasthenia Gravis – National Center for Advancing Translational Sciences

Myasthenia Gravis – National Institute of Health (NIH) – Rare Diseases

Myasthenia Gravis – National Institute of Neurological Disorders and Stroke Online printable fact sheet; Download brochure

Myasthenia Gravis – NHS – UK

Myasthenia Gravis – National Library of Medicine

Myasthenic Association in NSW-Australia

Myasthenia Gravis – Pain Assist
for symptom descriptions

Myasthenia Gravis Society (in Alabama)

Myasthenia Gravis Society of Canada – Provincial Chapters

Myasthenia Gravis – Science Direct

Myasthenia Gravis – US Dept of Health and Human Services-Office on Womenn’s Health

Myasthenia Gravis – US Department of Health and Wellness

Myasthenia Gravis – Verywell health

Myasthenia Gravis – Web M.D.

Myasthenia Gravis – Wikepedia

Myasthenia Gravis – Yale Medicine Printable fact sheet


ABOUT MG SELF-CARE

Healthgrade – 7 Tips for Living with MG

Kentucky Neuroscience Institute – UK Healthcare -MG Self care

Knowmg.com – Living with Myasthenia Gravis

Myaware -the UK – Fighting Myasthenia together

Myasthenia Gravis.com – Living with Myasthenia Gravis

Myasthenia Gravis Foundation – Living with Myasthenia

Myasthenia Gravis Foundation of America – Care of the Patient with MG pdf

Myasthenia Gravis Foundation – Wellness Strategies

National Library of Medicine -Self-care actions

North American Neuro-Ophthalmology Society -(eyes) Myasthenia Gravis

Physiopedia – Myasthenia gravis – management

Preprints – Management of Myasthenia during the COVID-19 Pandemic

Raremark.com – Living well

Rush University – Living with Myasthenia Gravis

US Department of Health and Wellness


MG NEWSLETTERS & OTHER

Canada

Myasthenia Gravis Society of Canada ‘VIEW‘ Online (CAN)
Current and back issues.

Myasthenia Gravis Association of British Columbia Newsletter Online (BC, CAN)

Some newsletters might have back issues online.


Other Locations

Myasthenia Gravis Foundation of America- Focus on MG, Spring 2021

MGNSW Newsletter (Australia)

Myasthenia Gravis News (BioNews Services, FL, USA)

Conquer MG Newsletter (IL, USA)

Myasthenia Gravis – Medical News Today (IL, USA

MG United – Living Life with MG
– apps to help

MGA Newsletter Online ( W. PA., USA)


FORUMS & COLUMNS

Strength in Weakness, by Michelle Gonzaba, a writer with myasthenia gravis on Myasthenia Gravis News.

Gonzaba also has discussion forums. You must become a member to participate.


MG STUDIES & REPORTS

The early history of myasthenia gravis (scientific articles)

News & Views in Management of MG (Reseach articles)


MG BOOKS, YouTube & VIDEOS, PODCASTS, CONFERENCE REPORTS, JOURNAL ARTICLES, RESEARCH ARTICLES

Eventually, I hope to be able to have time to add these links. There is much to do, but you can find what is online.

Some will be basic and some will be quite detailed – viewer’s choice. When ready, you may choose to pursue a fuller scope of what is available.

SUPPORT LINKS – SOCIAL, ONLINE, SOCIETIES, GOVERNMENTS
In addition to above sites, there are site links noted specifically for support of those with MG. See our page, Supporting One Another.


Beyond what is listed above

Beyond the incredible wealth of online resources, there are books and reference materials in local, city and university libraries, public and private, even in some hospitals, that might assist any search—call and find out what might be available. Adult and child level stories can give the writer’s perspective and experiences for us to learn from and evaluate against your own situation. Medical books sometimes are more detailed, but with important information, depending on what we are looking for.

We might find YouTube videos that are helpful, or podcasts. Different sites that talk about myasthenia may offer various helpful live presentations, zoom gatherings, or may schedule webinars, all of which can prove beneficial in research.

Never give up the quest! Google is not a doctor, but has much information for discovery.

It is possible that as I find more sites and more studies and more newsletters, and as stories begin to surface, more will be considered for addition here.

Suffice it to say, there is quite a bit to launch a research journey as it sits here now. Get a note pad or journal and sharp pencil.

Thank you for taking time to learn about myasthenia gravis.
Remember, share with one other person to raise awareness!

This is an awareness site only.
No diagnosis or treatment suggestions. Mainly, it is support and links to help those who are searching for ‘why they have weak muscles.’

Want to walk for, or donate to Myasthenia Gravis Society of Canada?
Visit Donate to MG Canada

Please, SHARE THIS SITE ...
others can learn by reading what you have discovered… a site solely for awareness of Myasthenia Gravis.


Resources for MG © 2021 Judith Allen Shone

Watercolor Image by JL G from Pixabay

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