June 27, 2021 (c) Judith Allen Shone
Life hacks and tips
Life belongs to the living, and he who lives must be prepared for changes.Johann Wolfgang von Goethe
We’ve heard, “necessity is the mother of invention.” Each person becomes creative in response to their needs, adapting what is available to solve their problems...what feels right?
It may be valuable to have an occupational therapist evaluate how you might improve your living arrangements for safety and convenience. Physical therapists and psychotherapists, art and music therapists, also have their place in life when we need them…visit them, talk with them, learn from them.
Here is a mix of comments from MG patients, therapists, online suggestions, and personal discoveries. Nothing applies to everyone, and there may be only a few that apply to each person. Add creative solutions to those that others have contributed. There are so many more and we can share them over time.
Remember, ultimately, we must be an advocate for ourselves. Reach out for support, reach out for what we need. No one knows if we don’t tell them.
- Ask for help when you need it. Most people are more than willing to assist.
- Consider using books with larger type or digital books on larger screens.
- Type pages with larger font size as default.
- Use automatic door openers
- Attach a laundry basket to a rolling chair to move objects or clothes around.
- Carry multiple items in a bag, a rolling brief case.
- Use tub rails or stronger grab bars, tub seats, tub mats, and elevated toilet seats for safety when appropriate. Use shower hose to eliminate lifting and reaching.
- Use an electric shaver so as not to hurt yourself. Shave outside of tub/shower to reduce possibility of falling.
- Opt for a side rail on the bed for help in movement.
- Wash glasses, rest. Wash other dishes, rest. Wash pans, rest. Dry glasses, rest. and continue as needed.
- Use tools to help opening cans, jars.
- Choose a front closing bra to help when arms are too weak to reach behind if it feels better.
- Select tight sandals or tie shoes to keep shoes from coming off and causing a fall.
- Wear clothing that will not get caught on surrounding objects to keep you from being pulled off balance.
- Carry phone on lanyard around neck, or easily accessible location, to eliminate stress of finding it when it rings.
- Choose food that is easy to chew and swallow.
- Ask for food cut up, or pureed. Small blenders help blend food at home.
- Sit in area easily accessible.
- I used my umbrella for a cane in my college years.
- Let others know you may need to rest, or use their arm for stability.
- Open pathways in the home for unobstructed mobility.
- To preserve energy, don’t stand when you can sit. Don’t sit when you can lie down.
- Activities can be split into sections, with rest between time periods.
- Rest periodically when walking….anywhere.
- Use a mobility aid when necessary: walking aids, rolling walker, special canes, walking sticks, wheeled chairs.
- Work from home instead of a work location if possible.
- Use arm or leg supports available at home and office.
- Use dictation on computer when you can instead of keyboard.
- Use grip aid on pencils and pens.
- Read when least tired.
- Remain social, no matter how much we want to retreat from our self-consciousness, or the world; we need to feel reassured that we definitely are part of that world where we live.
- Remember family and friends are in a position to bring smiles, laughter, and memories that can help life feel ‘normal.’ (Is there really a normal?)
- Allow strong social support in our life to foster good health, both physically and emotionally.
- Feel a sense of safety, comfort, and security, with socialization. It can distract and redirect from depression to allow lighter moods and happier moments.
Temperature and outdoors
- Stay out of hot humid or freezing cold temperatures.
- Keep wet towel in the refrigerator to have be handy for your neck.
- Remember, libraries, shopping malls, restaurants have AC when heat to too much.
When you visit the websites listed on the Resources page of this site, take note of the various topics they focus on. If they have a tips section, read it. You may not need their suggestions that day, but some day, you might.
We welcome comments in the section at bottom of page or send email with ideas you find helpful to solve your needs.
See other topics about Myasthenia Gravis in the main menu as well as the listed blog posts seen in the right column.
Want to walk for, or donate to Myasthenia Gravis Society of Canada?
Visit Donate to MG Canada
Strategies, tips and life hacks (c) 2021 Judith Allen Shone